Useful Links

Massachusetts General Hospital

Massachusetts General Hospital was established to provide care to Boston’s sick, regardless of socioeconomic status, and became the first teaching hospital of Harvard University’s new medical school. We have remained at the forefront of medicine by fostering a culture of collaboration and education, pushing the boundaries of medical research, and maintaining an unwavering commitment to the diverse community we were created to serve.

Center for Genomic Medicine

The Massachusetts General Hospital Center for Genomic Medicine (CGM) is leading an effort to complete the genomic medicine cycle – from genetic discoveries to mechanism to the clinic – by assessing where genomic medicine will have the greatest impact on human health, and by driving efforts to implement genomic medicine in those areas, at MGH and beyond.

Broad Institute

Broad Institute is a mission-driven community that brings together researchers in medicine, biology, chemistry, computation, engineering, and mathematics from across MIT, Harvard, and Harvard-affiliated hospitals, along with collaborators around the world.

Harvard Catalyst

Learn more about Harvard faculty, including their funding opportunities, collaborators, and publications through the Harvard Catalyst.

NF Sleep Study

The Walker lab is working to develop a sleep study in patients with Neurofibromatosis. Visit our website to find out more information or to sign up for updates regarding the status of this study.

Children’s Tumor Foundation

The Children’s Tumor Foundation’s mission is to drive research, expand knowledge, and advance care for the NF community.

Cure NF with Jack

CureNFwithJack is a nonprofit corporation founded by Jake Burke and Beth O’Brien, whose mission is to find an effective treatment or cure for individuals battling neurofibromatosis through the funding of research.  The inspiration and motivation behind this is their son Jack Burke, a dynamic, inspiring boy who lives with NF.

Neurofibromatosis Northeast

Neurofibromatosis Northeast has been promoting research, awareness, and advocacy for NF since 1988.

Gilbert Family Foundation

The Gilbert Family Foundation believes in working to accelerate a cure for neurofibromatosis through investments in cutting-edge research by fostering the best ideas, regardless of how radical they may seem at first, and creating multi-disciplinary teams with a shared vision.


The Neurofibromatosis Therapeutic Acceleration Program (NTAP) is focused exclusively on improving treatment options for people living with Neurofibromatosis type 1-related plexiform neurofibromas.

Therapeutics Graduate Program at Harvard Medical School

The Therapeutics Graduate Program focuses on pharmacology, toxicology and drug discovery, emphasizing research in both HMS labs and in real-world internships. Our goal is to provide students with the intellectual tool kit and practical skills necessary to be productive researchers in therapeutics discovery throughout the workforce.

MGB Training Program in Precision & Genomic Medicine

This training program brings together three outstanding components to build a world-class training program in precision and genomic medicine: 1) an internationally-recognized faculty with expertise in precision and genomic medicine across a broad range of disciplines, 2) outstanding institutional resources bridging clinical, genomic, and data sciences, and 3) deep engagement with cutting edge, collaborative initiatives at the regional, national, and international levels to provide rich training experiences.

HMS Research Training Program in Sleep, Circadian, and Respiratory Neurobiology

The Research Training Program in Sleep, Circadian and Respiratory Neurobiology is a multi-institutional, multi-disciplinary program that is supported by an NIH T-32 training grant that includes 28 Program faculty and supports 8 Post-doctoral, 4 Pre-doctoral and 3 Minority Medical Student trainees each year.

Harvard Brain Science Initiative

The mission of the Harvard Brain Science Initiative (HBI) is to promote interdisciplinary and cross-campus interactions amongst neuroscientists in the University and its affiliated hospitals — enhancing research, enriching education, engaging the public in brain science, and together expanding its power for the betterment of human health and society.

Boston Area Drosophila Meeting

The Boston Area Drosophila Meeting is open to anyone working on fruit flies in the New England region. Their hope is to occasionally bring together Drosophila researchers from different institutions to share their latest findings and expertise.

NF Data Portal

A home for Neurofibromatosis research resources. The NF Data Portal was created to help openly explore and share NF datasets, analysis tools, resources, and publications related to neurofibromatosis and schwannomatosis. Anyone can join the NF Open Science Initiative (NF-OSI) to contribute!

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